One to two percent of children born with this syndrome have a life expectancy of two to three years; however, most individuals reach adulthood and can live a life span into the fifties. Early treatment should be considered for the most severe issues with this condition to prolong life expectancy.

Developmental delay is often seen in children with 22q11. 2 deletion syndrome, including a delay in language. As the child grows older, intellectual disability and learning differences are likely to become more obvious. Verbal IQ is often greater than performance IQ as the child grows.

DiGeorge syndrome, also known as 22q11. 2 deletion syndrome, is a condition caused when a small part of chromosome 22 is missing. This deletion causes several body systems to develop poorly.

Max Appeal was founded by parents of children diagnosed with DiGeorge Syndrome/VCFS/22q11. 2 deletion. Max Appeal are a small national charity, run almost exclusively by a group of dedicated volunteers backed up with a knowledgeable panel of medical professionals.